Genes Foundation

A nonprofit organization

Children facing these challenges need their families to be united. GENES considers it important that parents and siblings also receive the necessary emotional support needed so that everyone can face the future in the best possible way.
We will focus on four basic points inherent to any diagnosis with a genetic condition:
-Family as the primary support system to help individuals cope with their condition.
-Education specific to the diagnosis
-Psychological / emotional well-being of both the patient and his/her family
-Knowledge of existing resources for the different stages and situations that
arise when living with a genetic condition.

SERVICES:
EMOTIONAL AND PRACTICAL SUPPORT TO UNDERSTAND AND CONFRONT THE DIAGNOSIS

PATIENTS AND FAMILY:
-Education specific to diagnosis
-Workshops and psychological counseling for patients, parents and siblings.
-Specialized workshops (How to face educational system, legal management
of adolescent to young adult, social adaptation, levels of independence and
resources, etc ...)
-Support groups for patients, parents, siblings and family members involved in
the care and development of a child with a genetic condition
-Education about existing resources
-Inclusion activities

HEALTH PROFESSIONALS AND EDUCATORS:
- Seminars and video conferences on the different genetic conditions
- Existing resources to help family / patients
- Update on medical advances
- Materials to help inclusion in the educational system.

Mission

GENES

Foundation servicing all families diagnosed with a genetic condition.

The vision of GENES is to provide the necessary support to children diagnosed with a genetic condition so that families can be educated about the diagnosis, become aware of available resources and therapy options that are available to them, and gain access to a network of families facing the same challenges, workshops, and seminars that will give them tools to reach the main objective; which is that these children can reach their maximum potential.

Organization Data

Summary

Organization name

Genes Foundation

Tax id (EIN)

47-5503803

Address

301 Altara Avenue Unit 402
Coral Gables, FL 33146

Phone

305-206-5448